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地址:北京市西城区广安门南街36号天缘公寓A座2508室

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中心简介

编辑:若初 浏览次数:2881 发表日期:2016-07-05 【收藏】
来源:北京爱力重症肌无力罕见病关爱中心

  2013年2月8日,北京爱力重症肌无力罕见病关爱中心(原重症肌无力关爱协会)在北京市民政局注册,取得民办非企业单位登记证书。

 

  In February 8th, 2013, Beijing Aili Myasthenia Gravis Care Center (formerly Myasthenia Gravis Association) was registered in Beijing Municipal Civil Affairs Bureau, obtaining the registration certificate for civil non-enterprise units.

 

  爱力关爱中心致力于为重症肌无力病友群体开展救助和关怀服务;帮助病友提高生存质量;倡导病友自助互助、自立自强,以坚强、感恩的心面对生活的精神,倡导与疾病和平相处的理念。

 

  Aili Myasthenia Gravis Care Center commits itself to providing support, assistance and care service for the people living with Myasthenia Gravis, and help them improve the quality of life. It advocates the behavior of self-help, self reliance and mutual aid; the attitude of toughness and gratitude toward life; the idea of living with MG in peace.

 

  我们的主要工作:宣传普及重症肌无力防治知识;救助贫困病友;开展康复教育,促进病友间的经验交流;开展就业指导与技能培训;关爱病友及其家庭的生活与心理健康;为病友提供相关咨询与服务。

 

  Our main work is to a) raise the awareness and disseminate the information of prevention and treatment for MG; b) assist MG patients in need of financial support; c) carry out rehabilitation education and promote experience exchange among the MG community; d) organize the activities of vocational guidance and skill training; e) give physical and mental health care for MG patients and their families; f) offer counseling and services for the people living with MG.

 

  我们的目标:疾病治疗普通化;病友康复常态化;生活工作正常化;普及防治大众化。

 

  Our aim: Make treatment accessible; make rehabilitation ordinary; make life and work normal; make MG known to all.

 

  我们的愿景:让每位病友与疾病和平相处!

 

  Our vision: Let every patient live with MG in peace!

 

  我们的口号:爱,让我们更有力!

 

  Our slogan: Love makes us strong!


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